• Dear Gwendolyn – Gwen’s eulogy

    Dear Gwendolyn, Please know we truly want to be the ones reading you this letter; however the emotions are way too high today. Writing about you and sharing your story to others has always been easy as [...]

  • March is National Disabilities Awareness Month!

    Hi, My name is Gwen!  I have profound global developmental delays- this means my whole body is severely disabled.  I am blind, non-verbal, no functional use of my arms and legs, wheelchair bound, feeding tube dependent, and more.  This [...]

  • Living on Love

    My daughter, Gwen, was five months old when she had a brain MRI that diagnosed her with severe neurological abnormalities.  Because her MRI findings were so rare, the medical team could not give us much information regarding her [...]

  • Sports Challenge

    Today is National Women in Sports Day honoring Female Athletes.  Gwen’s mom played soccer from age 5 through college.  Naturally, it was a dream to watch your own child enjoy the same sport. Gwen’s path proved to be different [...]

  • Rare Disease Day

    Today our Rare Girl celebrates Rare Disease Day. 80% of Rare Diseases are genetically based and only 5% have treatments. The zebra is the official symbol of rare diseases because of it’s black and white stripes, which are [...]

  • Hope: Even Elephants Start Out Small

    In 2016, I was wondering around Gap looking for a baby shower present for a dear friend. I stumbled upon this onesie and immediately purchased it for myself as a means to tell my husband we were pregnant- [...]

  • Dads Grieve, Too

    In celebration of Father’s Day this weekend, we want to share a valuable lesson we learned last year. This sweet face is Warrior William- he unexpectedly gained his angel wings in August 2020. While we don’t know his [...]

  • “Oh Sh*t” Moments

    Today, Ella (Gwen’s youngest sister) had her 4 month check up. I knew everything was ok but I still held my breath walking into the appointment.Rewind 6 years ago to Gwen’s 4 month checkup. Gwen had been crying 16-18 [...]

  • Gwen’s First Date

    Gwen’s birthday week was nothing short of special but there is one extra special moment that must be shared. Gwen was able to check another item off her bucket list: GO ON HER FIRST DATE!! Grab the tissues, folks...this [...]

  • September Smiles

    From Gwen: My Birthday Mission has been completed!! My goal: 10 Smile Bags Outcome: Over $8000 in donations and over 500 heartfelt cards allowed us to assemble 85 Smile Bags to be delivered to my fellow friends on [...]

  • Lesson From Gwen

    November and December this year brought some unexpected, but very welcomed warmer temperatures. We made sure to get Gwen outside for each of those days as sunshine is one of her favorite forms of medicine. One afternoon, [...]

  • A Miraculous Superhero

    Leading up to Gwen’s 3rd birthday, it only seemed fitting to have a superhero themed party for our extra strong girl!!  In preparation for Gwen's party, I was looking for a superhero cape on the internet. There is [...]

  • Lesson From Lunch

    Over Christmas Break, Mark and I took Gwen to lunch at a popular burger place. We walk in (Mark holding Gwen) and tell the hostess "we need a table for 2." She gives us a confused look and [...]

  • The Year My Daughter was Diagnosed

    Looking back at this year leaves me at a loss for words.  How did our first child, that we prayed so hard to conceive, get chosen for such a hard year? This year was one we could have [...]